Please click here for my presentation explaining the role of epilepsy self-management as a health promotion initiative for people with epilepsy and their caregivers.
Oral Presentation: https://bit.ly/3Vd0wOq
Slides:
Becker, D.A., Long, L., Santilli, N., Babrowicz, J. & Peck, E.Y. (2021). Patient, caregiver, and healthcare professional perspectives on seizure control and treatment goals. Epilepsy & Behavior, 117, 1-8. https://doi.org/10.1016/j.yebeh.2021.107816
Beghi, E. (2016). Addressing the burden of epilepsy: Many unmet needs. Pharmacological Research, 107, 79-84. https://doi.org/10.1016/j.phrs.2016.03.003
Brinkmann, B.H., Karoly, P.J., Nurse, E.S., Dumanis, S.B., Nasseri, M., Vlana, P.F., Schulze-Bonhage, A., Freestone, D.R., Worrell, G., Richardson, M.P. & Cook, M.J. (2021). Seizure diaries and forecasting with wearables: Epilepsy monitoring outside the clinic. Frontiers in Neurology, 12, 1-14. https://doi.org/10.3389/fneur.2021.690404
Chen, E., Sajatovic, M., Liu, H., Bukach, A., Tatsuoka, C., Welter, E., Schmidt, S.S., Bamps, Y.A., Stoll, S.C., Spruill, T.M., Friedman, D., Begley, C.E., Shegog, R., Fraser, R.T., Johnson, E.K. & Jobst, B.C. (2018). Demographic and clinical correlates of seizure frequency: Findings from the managing epilepsy well network database. Journal of Clinical Neurology, 14(2), 206-211. https://doi.org/10.3988/jcn.2018.14.2.206
England, M.J., Liverman, C.T., Schultz, A.N. & Strawbridge, L.M. (2012). Epilepsy across the spectrum: Promoting health and understanding. Summary of the Institute of Medicine Report, 25, 266-276. https://doi.org/10.1016/j.yebeh.2012/06.016
Feagin, J. (2017). Systemic racism and “race” categorization in U.S. medical research and practice. American Journal of Bioethics, 17(9), 54-56.HealthLink BC (2021). Epilepsy. HealthLink BC. Retrieved March 3, 2024 from https://www.healthlinkbc.ca/illnesses- conditions/epilepsy
Hixson, J.D. & Braverman, L. (2020). Digital tools for epilepsy: Opportunities and barriers. Epilepsy Research, 162, 1-7. https://doi.org/10.1016/j.eplepsyres.2019.106233
Lewinski, A.A., Shapiro, A., Gierisch, J.M., Goldstein, K.M., Blalock, D.V., Luedke, M.W., Gordon, A.M., Bosworth, H.B., Drake, C., Lewis, J.D., Sinha, S.R., Husain, A.M., Tran, T.T., Van Noord, M.G. & Williams, J.W. (2020). Barriers and facilitators to implementation of epilepsy self- management programs: A systematic review using qualitative evidence synthesis methods. Systematic Reviews, 9, 92-109. https://doin.org/10.1186/s13643-020-01322-9.
Luedke, M.W., Blalock, D.V., Lewinski, A.A., Shapiro, A., Drake, C., Lewis, J.D., Goldstein, K.M., Husain, A.M., Gierisch, J.M., Sinha, S.R., Tran, T.T., Gordon, A.M., Kosinski, A.S., Bosworth, H.B., Van Noord, M. & Williams, J.W. (2019). Self-management of Epilepsy: A Systematic Review. Evidence Synthesis Program. Retrieved March 3, 2024 from https://www.ncbi.nlm.nih.gov/books/NBK544549/pdf/Bookshelf_NBK544549.pdf
Miller, W.R., Wion, R.K. & Eads, P. (2021). Evaluation of emergency department-based seizure and epilepsy education: Exploring the need for early epilepsy self- management intervention. Epilepsy & Behavior, 116, 1-4. https://doi.org/10.1016/j.yebeh.2020.107702
Mlinar, S., Petek, D. Cotic, Z, Ceplak, M.M. & Zaletel, M. (2016). Persons with epilepsy: Between social inclusion and marginalization. Behavioural Neurology,1, 1-12. https://doi.org/10.1155/2016/2-185-0
Munjal, V., Arakelyan, M., McDonald, P.J. & Illes, J. (2020). Epilepsy through the eyes of the media: A paradox of positive reporting and challenges of access to advanced neurotechnology. Epilepsy & Behavior, 111, 1-17. https://doi.org/10.1016/j.yebeh.2020.107200
Mutanana, N., Tshababa, M., Senderayi, P, Nyathi, C. (2020). Health promotion and disease prevention: Theories and models influencing epilepsy management. Journal of Research and Innovation in Social Science, 4(9), 1-5.
Pandey, D.K., Levy, J., Serafini, A., Habibi, M., Song, W., Shafer, P.O. & Loeb, J.A. (2019). Self- management skills and behaviors, self-efficacy, and quality of life in people with epilepsy from underserved populations. Epilepsy & Behavior, 98, 258-265. https://doi.org/10.1016/j.yebeh.2019.07.042 Ramiah, R. (2020) Newer interventions in epilepsy management. Indian Journal of Practical Pediatrics, 22(1), 46-54. Retrieved March 3, 2024, from https://www.ijpp.in/Files/2020/ver1/Newer%0interventions%20in%epilepsy %20management.pdf
Rostad, S.E. & Ghearing, G.R. (2022). Self-care and epilepsy. Current Treatment Options in Neurology, 24, 641-654. https://doi/org/10.1007/s11940-022-00743-2 Szaflarski, M. (2014). Social determinants of health in epilepsy. Epilepsy & Behavior, 41, 283-289. https://doi.org/10.1016/j.yebeh.2014.06.013 Szaflarski, M., Szaflarski, J.P., Privitera, M.D., Ficker, D.M. & Horner, R.D. (2006). Racial/ethnic disparities in the treatment of epilepsy: What do we know? What do we need to know? Epilepsy & Behavior, 9, 243-264. https://doi.org/10.106/j.yebeh.2006.05.011
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